Whether you're a cancer patient, parent of a cancer patient, a friend/family member of a patient, or stumbled across my blog for some other reason, you may find some helpful information on here. I wanted this resource page to be useful to anyone, whether you're looking to help another family/friend or find information to help support you through your cancer journey or any other type of illness.
What is your best advice?
Have hope/stay positive
Attitude can make a big difference. As childhood cancer survivor Emily suggested, “Make sure you keep a positive spirit and don’t feel sorry for yourself. Enjoy life!” Of course, there will be bad days, but try to find something good in every day. Kelsey, a cancer survivor, said, “Don't give up hope. The world keeps turning and life goes on - even on your worst days.”
Find someone to talk to, especially others in similar situations
Cancer treatment is extremely frustrating and overwhelming, so it’s helpful to find someone willing to listen. It can be extremely helpful to talk to other patients who understand what you’re going through. Doctors have medical advice that they can give and share with you but, the other patients have the practical advice. Be positive and uplifting. It goes a long way.”
Ask any and all questions
No question is unimportant because it’s about you or your child. You know your body best or your child's, so don’t be afraid to advocate for yourself or them. If something doesn’t seem right, speak up. The nurses and doctors are caring for multiple patients, so sometimes things get overlooked. Write things down, you might forget once you get home. Another better option is to ask if you can record your conversations (all phone now have a voice memo section) so you can reference them later on when you are not so overwhelmed.
Take each day one step at a time
Cancer can be unpredictable, and treatment will never go 100% according to plan. Looking too far ahead can be overwhelming because of all the unknowns. Have patience and don’t expect a textbook solution to an individual problem. Each person is different and their experiences will be different.
Don’t be afraid to ask for help
Cancer treatment is exhausting, not just for the patient but also for the whole family. Brandy, whose son had leukemia, explained, “Don’t be afraid to ask for help when you need it, and be specific. Most people will do just about anything to help, but if they’ve never been in a like situation, they don’t know what you may need.” You can not do this all alone. There are some amazing people in the world who want to give back to the next family in need. Let them help you, you are going to need it and appreciate it.
Take Time to Recharge
Allow yourself to sleep, rest, heal, have fun times, and eat good foods. Nourish yourself. If you are not healthy, you will not have the energy to care for your loved one. Cancer families need to remember this because it is so easy to give up everything to care for your child or family member who is sick. You need some "me time" to keep strong for everyone around you. Don't feel bad if you think you are being selfish--you need this!
Cancer is a New Normal
It’s impossible to go back to life before cancer. However, this can be difficult for other people to understand. When my son came home from the hospital after being admitted for 10 days, life was not back to normal even though he was home. It’s hard to tell people that you don’t want to have play dates or visitors right away (especially ones with little kids) because I needed to protect my son from germs that would land him back in the hospital. Cancer is a life-changing experience for the whole family. Find what brings you joy and keep it in your life. Your new normal shouldn’t exclude the joy from your old normal.
Attitude can make a big difference. As childhood cancer survivor Emily suggested, “Make sure you keep a positive spirit and don’t feel sorry for yourself. Enjoy life!” Of course, there will be bad days, but try to find something good in every day. Kelsey, a cancer survivor, said, “Don't give up hope. The world keeps turning and life goes on - even on your worst days.”
Find someone to talk to, especially others in similar situations
Cancer treatment is extremely frustrating and overwhelming, so it’s helpful to find someone willing to listen. It can be extremely helpful to talk to other patients who understand what you’re going through. Doctors have medical advice that they can give and share with you but, the other patients have the practical advice. Be positive and uplifting. It goes a long way.”
Ask any and all questions
No question is unimportant because it’s about you or your child. You know your body best or your child's, so don’t be afraid to advocate for yourself or them. If something doesn’t seem right, speak up. The nurses and doctors are caring for multiple patients, so sometimes things get overlooked. Write things down, you might forget once you get home. Another better option is to ask if you can record your conversations (all phone now have a voice memo section) so you can reference them later on when you are not so overwhelmed.
Take each day one step at a time
Cancer can be unpredictable, and treatment will never go 100% according to plan. Looking too far ahead can be overwhelming because of all the unknowns. Have patience and don’t expect a textbook solution to an individual problem. Each person is different and their experiences will be different.
Don’t be afraid to ask for help
Cancer treatment is exhausting, not just for the patient but also for the whole family. Brandy, whose son had leukemia, explained, “Don’t be afraid to ask for help when you need it, and be specific. Most people will do just about anything to help, but if they’ve never been in a like situation, they don’t know what you may need.” You can not do this all alone. There are some amazing people in the world who want to give back to the next family in need. Let them help you, you are going to need it and appreciate it.
Take Time to Recharge
Allow yourself to sleep, rest, heal, have fun times, and eat good foods. Nourish yourself. If you are not healthy, you will not have the energy to care for your loved one. Cancer families need to remember this because it is so easy to give up everything to care for your child or family member who is sick. You need some "me time" to keep strong for everyone around you. Don't feel bad if you think you are being selfish--you need this!
Cancer is a New Normal
It’s impossible to go back to life before cancer. However, this can be difficult for other people to understand. When my son came home from the hospital after being admitted for 10 days, life was not back to normal even though he was home. It’s hard to tell people that you don’t want to have play dates or visitors right away (especially ones with little kids) because I needed to protect my son from germs that would land him back in the hospital. Cancer is a life-changing experience for the whole family. Find what brings you joy and keep it in your life. Your new normal shouldn’t exclude the joy from your old normal.
How can I help a patient/family?
When appointments last all day and medications are causing nasty side effects, even the smallest of chores can feel like trying to move a mountain. What can you do? Helping someone out doesn’t have to be a hassle – you can offer something you enjoy or are good at. Here are a few ideas to get you started, but the options are really endless.
Deliver a meal
This is one of the most common ways to help. Finding the time to shop for ingredients and actually prepare a meal can be a challenge during treatment, so coming home to food on the table can be a huge relief. You don’t need to make something complicated – patients and families alike agree that anything is appreciated! For more ideas about delivering meals, see the section "Advice for Meal Deliveries" below.
Keep up with the yard-work
After an exhausting day of appointments or a very stressful week, yard work is the last thing most patients or parents want to do. Offer to help out with whatever is seasonally appropriate – mowing the lawn, raking leaves, or shoveling snow. Patients with suppressed immune systems aren’t supposed to mow the lawn or rake leaves without wearing a heavy-duty mask because of the potential for spraying up mold spores. This makes these chores even less appealing!
Clean the house
Cleanliness is extremely important for suppressed immune systems. Patients and their families may not have the time or energy to clean. One mom that I talked to for advice said cleaning was one of the most helpful things people did during her daughter's treatment. There are several different organizations and foundations that are here to help with this kind of thing. Check out Cleaning for a Reason or Normal Moments.
House-sit
If the patient has pets, they may not be getting as much attention as they should. We all love our pets and we feel better knowing they’re well taken care of. Do you live nearby? Offer to let their dog out, or even better, take him for a walk! Another helpful hint is having someone stop by the house when deliveries or services required someone to be there.
Errands or Grocery Shopping
There are going to be several times where a patient or parents are going to be too be just to tired to even get to the store. Their might be last minute items that they might need, but going out into public is just to hard. Parents who work during the day and have a sick child find it very difficult to do every day tasks/errands and grocery shopping. Helping out with that elevates stress. In a world where there is an app for everything, you could help take care of the grocery shopping, or order groceries online and have them delivered. If you are running out to the store--shoot a text or phone call asking if there is anything they might need. My husband and I work opposite hours, we are home with our son alone and running out to get something we need is impossible. We have been very lucky to have family and friends help us get things we need or run out of and drop it off to us.
Offer a ride
Does the patient have kids or siblings? They may need rides to their activities during appointments. Parents try their best to make sure that the other siblings can continue with all of their normal sports and activities during treatment, but sometimes if there is no one able to take them, they can not attend their sports and activities. Getting rides from family, friends, neighbors and teammates will help those siblings continue with their "normal" life and routines. Sometimes the patient may need a ride to/from an appointment as well.
These are just a few ideas on ways that you can help, there are plenty more! If you a your own ideas, send them my way so I can share!
Deliver a meal
This is one of the most common ways to help. Finding the time to shop for ingredients and actually prepare a meal can be a challenge during treatment, so coming home to food on the table can be a huge relief. You don’t need to make something complicated – patients and families alike agree that anything is appreciated! For more ideas about delivering meals, see the section "Advice for Meal Deliveries" below.
Keep up with the yard-work
After an exhausting day of appointments or a very stressful week, yard work is the last thing most patients or parents want to do. Offer to help out with whatever is seasonally appropriate – mowing the lawn, raking leaves, or shoveling snow. Patients with suppressed immune systems aren’t supposed to mow the lawn or rake leaves without wearing a heavy-duty mask because of the potential for spraying up mold spores. This makes these chores even less appealing!
Clean the house
Cleanliness is extremely important for suppressed immune systems. Patients and their families may not have the time or energy to clean. One mom that I talked to for advice said cleaning was one of the most helpful things people did during her daughter's treatment. There are several different organizations and foundations that are here to help with this kind of thing. Check out Cleaning for a Reason or Normal Moments.
House-sit
If the patient has pets, they may not be getting as much attention as they should. We all love our pets and we feel better knowing they’re well taken care of. Do you live nearby? Offer to let their dog out, or even better, take him for a walk! Another helpful hint is having someone stop by the house when deliveries or services required someone to be there.
Errands or Grocery Shopping
There are going to be several times where a patient or parents are going to be too be just to tired to even get to the store. Their might be last minute items that they might need, but going out into public is just to hard. Parents who work during the day and have a sick child find it very difficult to do every day tasks/errands and grocery shopping. Helping out with that elevates stress. In a world where there is an app for everything, you could help take care of the grocery shopping, or order groceries online and have them delivered. If you are running out to the store--shoot a text or phone call asking if there is anything they might need. My husband and I work opposite hours, we are home with our son alone and running out to get something we need is impossible. We have been very lucky to have family and friends help us get things we need or run out of and drop it off to us.
Offer a ride
Does the patient have kids or siblings? They may need rides to their activities during appointments. Parents try their best to make sure that the other siblings can continue with all of their normal sports and activities during treatment, but sometimes if there is no one able to take them, they can not attend their sports and activities. Getting rides from family, friends, neighbors and teammates will help those siblings continue with their "normal" life and routines. Sometimes the patient may need a ride to/from an appointment as well.
These are just a few ideas on ways that you can help, there are plenty more! If you a your own ideas, send them my way so I can share!
How can I support from a distance?
If you live far away from a patient, it may seem like there is nothing you can do to help. However, that is far from the case! There are many ways you can show a patient you’re thinking about him or her, no matter how many miles are between you.
Give blood
The number of units of blood patients received during treatments is a lot. There are red blood cells, platelets, and antibodies, all of which were critical to recovery. After a while, it was hard not to be worried about the amount of blood that is being using up, especially knowing there are frequently shortages around the country. Even if you’re not the same blood type as the patient, let them know that you gave blood to help other patients. Find a Red Cross blood drive near you.
Join the bone marrow registry
This is a big one, especially if the patient is receiving a bone marrow transplant. Bone marrow is much more difficult to match than blood, so the more people who register, the better a patient’s chances are at finding a match. You’re unlikely to match the patient you know, but you could save someone else’s life. Be The Match looks for patients between the ages of 18 and 44 who are in good health and all it takes to join is a cheek swab. It may seem like you’ll never get picked, but one of my friends was called as a potential match within 6 months of registering. Sign up or learn more about Be The Match!
Donate to an organization that is important to the patient
Sometimes the most intense part of treatment may fall around the holidays, so many people would like to make donations to organizations that would help families still enjoy the holidays. Some patients may not want to be showered in gifts and food and would rather you send your support to others, no matter what time of year.
Share the patient’s story
This definitely depends on the patient! Some patients really appreciate when you add their names to your church’s prayer list or share their Facebook posts to spread awareness. I am keeping a blog detailing my son's treatment journey, and I love when people would share it with others who may not know me. Most people don’t have any idea what it’s like to have a child with cancer, and I want to get my story out there. If I can help someone else going through what I am going through, makes my heart happy.
If sending meals and care packages aren’t your style, showing indirect support is a great way to let patients know you are thinking of them and helping others in their honor.
Give blood
The number of units of blood patients received during treatments is a lot. There are red blood cells, platelets, and antibodies, all of which were critical to recovery. After a while, it was hard not to be worried about the amount of blood that is being using up, especially knowing there are frequently shortages around the country. Even if you’re not the same blood type as the patient, let them know that you gave blood to help other patients. Find a Red Cross blood drive near you.
Join the bone marrow registry
This is a big one, especially if the patient is receiving a bone marrow transplant. Bone marrow is much more difficult to match than blood, so the more people who register, the better a patient’s chances are at finding a match. You’re unlikely to match the patient you know, but you could save someone else’s life. Be The Match looks for patients between the ages of 18 and 44 who are in good health and all it takes to join is a cheek swab. It may seem like you’ll never get picked, but one of my friends was called as a potential match within 6 months of registering. Sign up or learn more about Be The Match!
Donate to an organization that is important to the patient
Sometimes the most intense part of treatment may fall around the holidays, so many people would like to make donations to organizations that would help families still enjoy the holidays. Some patients may not want to be showered in gifts and food and would rather you send your support to others, no matter what time of year.
Share the patient’s story
This definitely depends on the patient! Some patients really appreciate when you add their names to your church’s prayer list or share their Facebook posts to spread awareness. I am keeping a blog detailing my son's treatment journey, and I love when people would share it with others who may not know me. Most people don’t have any idea what it’s like to have a child with cancer, and I want to get my story out there. If I can help someone else going through what I am going through, makes my heart happy.
If sending meals and care packages aren’t your style, showing indirect support is a great way to let patients know you are thinking of them and helping others in their honor.
What should i put in a care package?
If you live far away, sending a care package can be the perfect way to show your support to someone going through a tough time. Even if you live close and want to get a little something to cheer the patient up these ideas below are great. While it’s difficult to offer specific advice without knowing the individual you are shopping for, I have a few ideas.
For Pediatric Cancer Patients:
Kids Hope Chest
With a variety of medical equipment in fun shapes and colorful designs, Kids Hope Chest is a great source for fixing up dreary hospital rooms and adding a little flair to feeding tubes, IV poles, and the like.
Rock the Treatment
Gift Baskets that Ease the Side Effects of Cancer Treatment - ROCK the TREATMENT™, so you too can help your friends or loved ones with gifts that are useful. Every product in our baskets has a very specific purpose and has been chosen because it offers a maximum benefit in accomplishing the goal of making your friend or family member look and feel his or her best.
Healing Baskets
Because not every situation in life can be addressed with flowers or a card, Healing Baskets specializes in thoughtful gift selections for those facing a variety of challenges. From cancer and loss to divorce and sobriety, their baskets give simple pleasures to those need. There are also selections designed for caregivers, whose own sacrifices often go unmarked or unnoticed.
Headwear Unlimited
Specializing in hats and headgear for children experiencing hair loss, Headwear Unlimited has a wide variety of warm and whimsical coverings that will be as popular with friends and siblings are they will be with the patient.
American Girl
From a mall near you, American Girl presents something a little more substantial than a doll. This feelings journal, ideal for girls ages 8-12, gives writing prompts that help her uncover conflicting thoughts and messy emotions. A thoughtful gift for any kid, it can be especially empowering for a child with a serious medical condition.
Choose Hope
Choose Hope offers a variety of products for the cancer community, from apparel to jewelry and journals, all available in the recognized colors of various cancer charities. What's more, they robustly support cancer research. As of 2016, this for-profit business has donated over $900,000 to various treatment and research charities.
NEGU (Never Ever Give Up)/Jessie Rees Foundation
A vibrant 12-year-old who lived by the creed of Never Ever Give Up, Jessie Rees ultimately succumbed to cancer in 2012. But before she did, she brightened the lives of other cancer kids like herself, founding a charity that delivers jars of toys and activities at no cost to children with terminal illnesses. The foundation lives on in her honor.
Etsy
The internet craft marketplace is chockablock with gift ideas, but some, in particular, have appeal to kids with cancer. These include keychains and Bravery Buddies #1 and Bravery Buddies #2.
Bed Rest Pillows
Putting together a medical kit that contains one or more of the following useful items is a great way to show your support for a child or family. Ideas for valuable items include:
Hand sanitizer
There may be times when you want to give your friend a gift. As with any gift, keep in mind the interests and hobbies of your friend. A close friend may be able to give something silly or unusual. A neighbor or colleague may want to stick with something more traditional. Keep gifts fun, interesting, serious, or light, depending on what your friend needs the most at that moment.
Some ideas include:
For Pediatric Cancer Patients:
Kids Hope Chest
With a variety of medical equipment in fun shapes and colorful designs, Kids Hope Chest is a great source for fixing up dreary hospital rooms and adding a little flair to feeding tubes, IV poles, and the like.
Rock the Treatment
Gift Baskets that Ease the Side Effects of Cancer Treatment - ROCK the TREATMENT™, so you too can help your friends or loved ones with gifts that are useful. Every product in our baskets has a very specific purpose and has been chosen because it offers a maximum benefit in accomplishing the goal of making your friend or family member look and feel his or her best.
Healing Baskets
Because not every situation in life can be addressed with flowers or a card, Healing Baskets specializes in thoughtful gift selections for those facing a variety of challenges. From cancer and loss to divorce and sobriety, their baskets give simple pleasures to those need. There are also selections designed for caregivers, whose own sacrifices often go unmarked or unnoticed.
Headwear Unlimited
Specializing in hats and headgear for children experiencing hair loss, Headwear Unlimited has a wide variety of warm and whimsical coverings that will be as popular with friends and siblings are they will be with the patient.
American Girl
From a mall near you, American Girl presents something a little more substantial than a doll. This feelings journal, ideal for girls ages 8-12, gives writing prompts that help her uncover conflicting thoughts and messy emotions. A thoughtful gift for any kid, it can be especially empowering for a child with a serious medical condition.
Choose Hope
Choose Hope offers a variety of products for the cancer community, from apparel to jewelry and journals, all available in the recognized colors of various cancer charities. What's more, they robustly support cancer research. As of 2016, this for-profit business has donated over $900,000 to various treatment and research charities.
NEGU (Never Ever Give Up)/Jessie Rees Foundation
A vibrant 12-year-old who lived by the creed of Never Ever Give Up, Jessie Rees ultimately succumbed to cancer in 2012. But before she did, she brightened the lives of other cancer kids like herself, founding a charity that delivers jars of toys and activities at no cost to children with terminal illnesses. The foundation lives on in her honor.
Etsy
The internet craft marketplace is chockablock with gift ideas, but some, in particular, have appeal to kids with cancer. These include keychains and Bravery Buddies #1 and Bravery Buddies #2.
Bed Rest Pillows
- Bed rest pillows allow the child to rest in a sitting position on something comfortable. For examples of fun bed rest pillows, visit Bed Bath and Beyond and check out a variety of colors, textures and a even some college football theme
Putting together a medical kit that contains one or more of the following useful items is a great way to show your support for a child or family. Ideas for valuable items include:
Hand sanitizer
- Try finding a brand that is organic or moisturizes since sanitizer can be rough on hands when used as much as a family living with cancer uses it.
- Buzzy® is simply a bee-shaped ice pack that vibrates and can be used for natural pain relief. It can be used on any sharp pain, itches and burns. The vibration and cold desensitize the body’s nerves and dull or eliminate pain.
- Any way we can help kids take oral medication is a benefit. This sippy cup has a hidden medicine dispenser that snaps into place to make the task so much easier. Along the same lines Ava the elephant makes medicine fun!
- Accurate temperature readings are very important to families living with childhood cancer. Ear thermometers are fast and non-invasive.
- It’s a good idea to keep peripheral IV lines covered so kids don’t pull at them. Etsy has some fun and funky covers so kids of all ages can cover Picc Lines with pride.
- Not all children in cancer treatment need NG or G tubes, but if they do, here are a couple of fantastic products:
- G Tube Protective Belt
- Feeding Friends NG and NJ
There may be times when you want to give your friend a gift. As with any gift, keep in mind the interests and hobbies of your friend. A close friend may be able to give something silly or unusual. A neighbor or colleague may want to stick with something more traditional. Keep gifts fun, interesting, serious, or light, depending on what your friend needs the most at that moment.
Some ideas include:
- Magazines, audio books, novels, books of short stories or poetry, or gift cards to purchase reading material
- CDs or gift cards for downloadable music
- DVDs of movies, TV shows, or documentaries
- Pictures of friends and family
- Accessories such as earrings, bracelets, scarves, ties, hats, or beauty items
- Crossword or Sudoku puzzles
- Note cards or a journal
- A video message from family and friends
- Gift certificates for massage, spa services, restaurants, or passes for museums or an art gallery
- Gift cards to grocery stores
- A housecleaning service
- Portable hobby supply kits for scrapbooking, drawing, or needlepoint
- Pajamas or robe
- Adult coloring books
- Sock/Slippers
- Insulated water bottles
- Big comfy sweaters
- Port pillow
- Ipad/Kindle/Tablet
- Bluetooth Speaker
- Blanket
- Compression Socks
- Tote bag
- Organize a sign-up sheet for the patient’s friends, neighbors and co-workers. Categories can include dropping off meals, dog-walking, laundry, housecleaning, errands, grocery shopping.
how can i stay busy at the hospital?
The hospital is remarkable monotonous and there’s no changing that. While some hospital stays are planned, you would have some time to grab a few essentials or means for entertainment, but sometimes you have to make do with what’s available if the stay was unplanned.
Stay active
It’s very important to get up and move around as much as possible. It’s easy to lose a lot of muscle quickly by staying in bed all day, but even a lap or two a day can make a big difference. To mix it up, you can also leave the floor and do some stairs or walk around the hospital if your nurse is okay with it. Idea: go out after visiting hours are over – less people means less germs.
Invite visitors
As long as your family and friends aren’t sick and are willing to wash their hands and sit around with you, there is usually no reason that you can’t have visitors. Seeing family and friends is a great break in the dullness of days in the hospital. Our first week when we were diagnosed, we had a steady stream of visitors come. It was so nice to have something to look forward to each day so you didn't feel too alone and bored.
Keep games on hand
If you have a hospital bag that always stays packed, keep a few games in it. Puzzle books, decks of cards, Uno, Spot It, and Bananagrams are all small and easy to keep tucked in your bag. Make sure to have all your electronic cords pack and ready to go also. An extra set of cords is very helpful!
Talk to Child Life
If you’re at a larger children's hospital, there is probably a child life specialist available. Our hospital had playrooms stocked with games, toys and movies, so my son had endless entertainment options. Child Life specialists and volunteers were also available to chat or play games. There is music therapy, art therapy, and dog therapy that is also offered to kids during their stay to keep active and busy.
Keep your mind busy
If puzzle books aren’t for you, find another way to keep yourself busy. Make a lists of things you would rather be doing. While I couldn't sleep at, and as I wanted my baby sleep in his crib, I started to make a list of all the home projects I would love to complete. I even went as far as to link the items and price them out. Getting my mind on something else really helped me no focus on the fact that my baby was sick. Start planning a trip or an end-of-treatment party. Not only will it keep your mind busy, it will give you something to look forward to.
Find a new series
Whether you like to read or watch television, there’s no better time to start a new series than when you’re stuck in the hospital. People love to give entertainment recommendations, so you will never bored. Hulu, Netfilx, Texture, and Kindle--Great apps to have on your Ipad or table to keep you entertained.
Stay active
It’s very important to get up and move around as much as possible. It’s easy to lose a lot of muscle quickly by staying in bed all day, but even a lap or two a day can make a big difference. To mix it up, you can also leave the floor and do some stairs or walk around the hospital if your nurse is okay with it. Idea: go out after visiting hours are over – less people means less germs.
Invite visitors
As long as your family and friends aren’t sick and are willing to wash their hands and sit around with you, there is usually no reason that you can’t have visitors. Seeing family and friends is a great break in the dullness of days in the hospital. Our first week when we were diagnosed, we had a steady stream of visitors come. It was so nice to have something to look forward to each day so you didn't feel too alone and bored.
Keep games on hand
If you have a hospital bag that always stays packed, keep a few games in it. Puzzle books, decks of cards, Uno, Spot It, and Bananagrams are all small and easy to keep tucked in your bag. Make sure to have all your electronic cords pack and ready to go also. An extra set of cords is very helpful!
Talk to Child Life
If you’re at a larger children's hospital, there is probably a child life specialist available. Our hospital had playrooms stocked with games, toys and movies, so my son had endless entertainment options. Child Life specialists and volunteers were also available to chat or play games. There is music therapy, art therapy, and dog therapy that is also offered to kids during their stay to keep active and busy.
Keep your mind busy
If puzzle books aren’t for you, find another way to keep yourself busy. Make a lists of things you would rather be doing. While I couldn't sleep at, and as I wanted my baby sleep in his crib, I started to make a list of all the home projects I would love to complete. I even went as far as to link the items and price them out. Getting my mind on something else really helped me no focus on the fact that my baby was sick. Start planning a trip or an end-of-treatment party. Not only will it keep your mind busy, it will give you something to look forward to.
Find a new series
Whether you like to read or watch television, there’s no better time to start a new series than when you’re stuck in the hospital. People love to give entertainment recommendations, so you will never bored. Hulu, Netfilx, Texture, and Kindle--Great apps to have on your Ipad or table to keep you entertained.
what "extras" do i need at the hospital?
Whether you are a parent or the patient, packing for your hospital stay is no picnic. Sometimes you will have warning that you will be staying over night other times, you might not be so prepared for your stay. Having an extra "go-to" already packed bag might make it just a tag bit easier. Of course you need clothes, but there are additional items that can make a hospital stay significantly more comfortable.
Foam pad
Patient beds are usually comfortable enough, but anyone staying overnight with the patient will probably be sleeping on a fold-out chair. These aren’t particularly comfortable, but a foam pad makes this sleeping situation much more tolerable. These pads are absolutely worth the 15 dollars – sleep is hard enough to come by in the hospital even when you’re comfortable.
Room decorations
Decorations can be simple like pictures, or things that you keep at your bedside to give you comfort. When we were first diagnosed with our son-I brought with us some of our Greek Orthodox icons and crosses. I also had a few family pictures so my son could see us while he was in his crib. I enjoyed having pictures of great memories that could always make me smile. My decorations were also good talking points with the hospital staff. Different hospitals have different rules about decorating, but some also allow removable wall or window clings.
Comfortable clothes
Many people prefer wearing their own clothes instead of hospital gowns. Keep in mind any lines that need to be accessed. For the kiddos, there are some great foundations out there that have special hospital gowns for kids. Brave Gowns, Starlight Children's Foundation, Gracie's Gowns, and for their favorite stuffed friend: Wishers and Dreamers Hospital Doll Gowns
Entertainment
Entertainment is key to a good hospital packing list, but there are quite a few options. If you have electronics, make sure you pack all of the necessary chargers. It’s also great to have games, cards, books, and other activities. Most hospitals have ipad and movies that you can use while you stay too.
Food
Hospital food isn't always the most gourmet option around, but most units have a refrigerator and microwave for patient/family use. My sister has brought many home-cooked meals for us to enjoy while we are in our hospital stay. Cookies, crackers, candy, popcorn, soup, and other snacks are great to have around...they are easy to store and snack on when you need something different.
Pillowcase/bedding
Hospital pillowcases and sheets are usually too thin to make the plastic beds comfortable. I liked to bring a pillow and pillowcase from home that’s softer. My son only wanted his certain baby pillows, blankets, and stuffed animals in his crib and by having those, he felt and slept like he was back at home with his familiar items. Some people bring their own sheets and a comfortable blanket during the inpatient stays. In addition to sheets, blankets, and pillows, I also bring my own towels, which are much larger and softer than hospital towels. Having a few "familiar" items will make the stay much less daunting. Special pillowcases for the kids is also really cool, check out Cases for Smiles.
Toiletries
The hospital will provide soap and a toothbrush if you forget them, but using your normal products is one way to maintain a sense of normalcy. Especially for long stays, you’ll want to be as comfortable as possible. Bringing makeup (for visitors), own soap/shampoo, and if you have a favorite toilet paper, bring that too. No one is going to look at you funny if you are blow-drying your hair and straightening it. Feeling good on the outside will make your insides feel good too!
Storage
Hospital rooms aren’t always set up for long stays. Pack some of the essentials in plastic three-drawer chests. These help keep things organized and reduced the packing/unpacking. They fit well under the sink or next to the bed. People will be visiting you and bring your snacks and little gifts, instead of it all over the room making a mess (I love organization) it is perfect to keep it all contained and clean-looking.
Foam pad
Patient beds are usually comfortable enough, but anyone staying overnight with the patient will probably be sleeping on a fold-out chair. These aren’t particularly comfortable, but a foam pad makes this sleeping situation much more tolerable. These pads are absolutely worth the 15 dollars – sleep is hard enough to come by in the hospital even when you’re comfortable.
Room decorations
Decorations can be simple like pictures, or things that you keep at your bedside to give you comfort. When we were first diagnosed with our son-I brought with us some of our Greek Orthodox icons and crosses. I also had a few family pictures so my son could see us while he was in his crib. I enjoyed having pictures of great memories that could always make me smile. My decorations were also good talking points with the hospital staff. Different hospitals have different rules about decorating, but some also allow removable wall or window clings.
Comfortable clothes
Many people prefer wearing their own clothes instead of hospital gowns. Keep in mind any lines that need to be accessed. For the kiddos, there are some great foundations out there that have special hospital gowns for kids. Brave Gowns, Starlight Children's Foundation, Gracie's Gowns, and for their favorite stuffed friend: Wishers and Dreamers Hospital Doll Gowns
Entertainment
Entertainment is key to a good hospital packing list, but there are quite a few options. If you have electronics, make sure you pack all of the necessary chargers. It’s also great to have games, cards, books, and other activities. Most hospitals have ipad and movies that you can use while you stay too.
Food
Hospital food isn't always the most gourmet option around, but most units have a refrigerator and microwave for patient/family use. My sister has brought many home-cooked meals for us to enjoy while we are in our hospital stay. Cookies, crackers, candy, popcorn, soup, and other snacks are great to have around...they are easy to store and snack on when you need something different.
Pillowcase/bedding
Hospital pillowcases and sheets are usually too thin to make the plastic beds comfortable. I liked to bring a pillow and pillowcase from home that’s softer. My son only wanted his certain baby pillows, blankets, and stuffed animals in his crib and by having those, he felt and slept like he was back at home with his familiar items. Some people bring their own sheets and a comfortable blanket during the inpatient stays. In addition to sheets, blankets, and pillows, I also bring my own towels, which are much larger and softer than hospital towels. Having a few "familiar" items will make the stay much less daunting. Special pillowcases for the kids is also really cool, check out Cases for Smiles.
Toiletries
The hospital will provide soap and a toothbrush if you forget them, but using your normal products is one way to maintain a sense of normalcy. Especially for long stays, you’ll want to be as comfortable as possible. Bringing makeup (for visitors), own soap/shampoo, and if you have a favorite toilet paper, bring that too. No one is going to look at you funny if you are blow-drying your hair and straightening it. Feeling good on the outside will make your insides feel good too!
Storage
Hospital rooms aren’t always set up for long stays. Pack some of the essentials in plastic three-drawer chests. These help keep things organized and reduced the packing/unpacking. They fit well under the sink or next to the bed. People will be visiting you and bring your snacks and little gifts, instead of it all over the room making a mess (I love organization) it is perfect to keep it all contained and clean-looking.
How to show continued support to a patient/family?
If one of your friends has cancer, you may be wondering the best way to support him or her. Even though you want to help, it can be hard to know what to say or do. It is important to remember that there are no set rules and every friendship is different. Keep it simple. Remember that often the little things mean the most.
Take Time to Prepare Yourself
Here are some things to consider before talking to a friend who has cancer:
Helpful tips when supporting a friend
Although each person with cancer is different, here are some general suggestions for showing support:
Do not be afraid to talk with your friend. It is better to say, “I don’t know what to say” than to stop calling or visiting out of fear.
Here are some things you can say to help show your care and support:
Offering practical help
Your help with daily tasks and chores is often valuable for a friend with cancer. Be creative with the help you offer. Let them know that you are available if an unexpected need comes up.
Here are some suggestions to get you started:
Forming support teams
Organizing a support team is a great way to help a friend living with cancer. Some online communities offer tools to coordinate tasks among friends and caregivers.
Above information has been acquired by the following website:
“Supporting a Friend Who Has Cancer.” Cancer.Net, 7 Jan. 2019, www.cancer.net/coping-with-cancer/talking-with-family-and-friends/supporting-friend-who-has-cancer.
Take Time to Prepare Yourself
Here are some things to consider before talking to a friend who has cancer:
- Process your own feelings beforehand. Learning that a friend has cancer can be difficult news to hear. Take time to acknowledge and cope with your own emotions about the diagnosis before you see him or her. This way, you can keep the focus on your friend.
- Learn about the diagnosis. Your friend may not want to talk about the details for many reasons. It can be physically and emotionally tiring to repeat the same information to different people. If possible, the person’s spouse or a mutual friend may be able to give you the basics.
- Think about it from your friend’s perspective. Remember a time when you were scared or felt sick. Think about what it felt like. What did you want to talk about? How did you want to be treated? You may also want to prepare yourself for changes in your friend’s appearance. Start your visit by saying “It’s good to see you” instead of commenting on any physical changes.
Helpful tips when supporting a friend
Although each person with cancer is different, here are some general suggestions for showing support:
- Ask permission. Before visiting, giving advice, and asking questions, ask if it is welcome. Be sure to make it clear that saying no is perfectly okay.
- Make plans. Do not be afraid to make plans for the future. This gives your friend something to look forward to, especially because cancer treatment can be long and tiring.
- Be flexible. Make flexible plans that are easy to change in case your friend needs to cancel or reschedule.
- Laugh together. Be humorous and fun when appropriate and when needed. A light conversation or a funny story can make a friend’s day.
- Allow for sadness. Do not ignore uncomfortable topics or feelings.
- Check in. Make time for a check-in phone call. Let your friend know when you will be calling. Also, let your friend know that it is okay not to answer the phone.
- Offer to help. Many people find it hard to ask for help. But your friend will likely appreciate the offer. You can offer to help with specific tasks, such as taking care of children, taking care of a pet, or preparing a meal. If your friend declines an offer, do not take it personally.
- Follow through. If you commit to help, it is important that you follow through on your promise.
- Treat them the same. Try not to let your friend’s condition get in the way of your friendship. As much as possible, treat him or her the same way you always have.
- Talk about topics other than cancer. Ask about interests, hobbies, and other topics not related to cancer. People going through treatment sometimes need a break from talking about the disease.
- Read his or her blog, web page, or group emails. Some people living with cancer choose to write a blog about their experience that they can share with friends and family. Or, a family member will post updates to a personal web page or send a group email. Stay current with these updates so that your friend does not have to repeat experiences or information multiple times. These updates are also a great way to start a conversation.
Do not be afraid to talk with your friend. It is better to say, “I don’t know what to say” than to stop calling or visiting out of fear.
Here are some things you can say to help show your care and support:
- I'm sorry this has happened to you.
- If you ever feel like talking, I’m here to listen.
- What are you thinking of doing, and how can I help?
- I care about you.
- I’m thinking about you.
- I know just how you feel.
- I know just what you should do.
- I’m sure you’ll be fine.
- Don’t worry.
- How long do you have?
Offering practical help
Your help with daily tasks and chores is often valuable for a friend with cancer. Be creative with the help you offer. Let them know that you are available if an unexpected need comes up.
Here are some suggestions to get you started:
- Shop for groceries and pick up prescriptions.
- Help with chores around the house.
- Cook dinner and drop it off. Ask about dietary restrictions beforehand.
- Schedule a night of takeout food and movies together.
- Baby-sit children, take them to and from school and activities, or arrange for play dates.
- Organize a phone chain or support team to check on your friend regularly.
- Drive your friend to an appointment or a support group meeting. Offer to take notes during an appointment or give him or her company during a treatment.
- Go for a walk together.
- Think about the little things your friend enjoys and that make life “normal” for them.
- Find small ways to support your friend if he or she decides to participate in a fundraiser or outing.
Forming support teams
Organizing a support team is a great way to help a friend living with cancer. Some online communities offer tools to coordinate tasks among friends and caregivers.
Above information has been acquired by the following website:
“Supporting a Friend Who Has Cancer.” Cancer.Net, 7 Jan. 2019, www.cancer.net/coping-with-cancer/talking-with-family-and-friends/supporting-friend-who-has-cancer.
how to support siblings/parents of a patient?
Cancer is a hard time in anyone's lives, to say the least, but the amazing outpouring of support from friends and family can go a long way to make it easier.
If someone you know has a child or family member being treated for cancer, there are a lot of ways to help. Here are some tips and ideas based on our experience and that of other families we’ve met:
1. Don’t just ask; do. It’s nice to say, “Please let me know if there’s anything I can do.” But we love even more when people don’t leave the ball in our court, but make a concrete offer: “I’d like to bring a meal, if that would help. When would be the best time to deliver it?” or “I’m free this Saturday night. Want me to come babysit so you can have a night out?”
2. Give a gift card. It may seem impersonal, but it’s not. Having a child with cancer can be a major financial strain on families, between related expenses (parking, co-pays, take-out food, etc.) or a parent having to work less or not at all. Gift cards for household expenses like groceries, pharmacy and purchases at places like Target or The Home Depot can be a huge help.
3. Don’t forget siblings. Cancer is just as disruptive to the lives of “well” children as it is to their brothers or sisters with cancer. Siblings grapple with jealousy, fear, anger and a host of other emotions. If you want to send a gift for the child with cancer, give something equally special to his or her siblings. Not only will the siblings appreciate it; the parents will, too—trust me.
4. Help later. While it’s natural to want to help immediately after a child is diagnosed, don’t forget that cancer can be a long haul. There may be months or even years of treatment and hospital stays ahead. And while cancer quickly becomes the “new normal” for families, the emotional and financial strains remain.
5. Say something. We are moved and appreciative when friends send gifts, make meals, etc. But we also love getting cards , emails, texts or even simply hearing “I’ve been thinking about you,” when we see friends and acquaintances. It’s a source of great comfort and strength to us to know that people are sending “good vibes” to our family.
For Siblings
Here are some tips for helping siblings manage:
These books may be a useful when helping children who have a sibling with cancer:
Sibling “BEADS” Program:
The Sibling Program is adapted from its popular BEADS program, which is designed to help boost the spirits of pediatric cancer patients. Similarly, Sibling BEADS is designed to represent the unique experience of having a brother or sister with cancer. Beads represent milestones, such as celebrating time with family for occasions like Make A Wish, recognizing sacrifices such as time spent in clinic or at the hospital, and encouraging participation in sibling support programs.
Check out this article: How to Help Healthy Children Cope When a Sibling Has Cancer
If someone you know has a child or family member being treated for cancer, there are a lot of ways to help. Here are some tips and ideas based on our experience and that of other families we’ve met:
1. Don’t just ask; do. It’s nice to say, “Please let me know if there’s anything I can do.” But we love even more when people don’t leave the ball in our court, but make a concrete offer: “I’d like to bring a meal, if that would help. When would be the best time to deliver it?” or “I’m free this Saturday night. Want me to come babysit so you can have a night out?”
2. Give a gift card. It may seem impersonal, but it’s not. Having a child with cancer can be a major financial strain on families, between related expenses (parking, co-pays, take-out food, etc.) or a parent having to work less or not at all. Gift cards for household expenses like groceries, pharmacy and purchases at places like Target or The Home Depot can be a huge help.
3. Don’t forget siblings. Cancer is just as disruptive to the lives of “well” children as it is to their brothers or sisters with cancer. Siblings grapple with jealousy, fear, anger and a host of other emotions. If you want to send a gift for the child with cancer, give something equally special to his or her siblings. Not only will the siblings appreciate it; the parents will, too—trust me.
4. Help later. While it’s natural to want to help immediately after a child is diagnosed, don’t forget that cancer can be a long haul. There may be months or even years of treatment and hospital stays ahead. And while cancer quickly becomes the “new normal” for families, the emotional and financial strains remain.
5. Say something. We are moved and appreciative when friends send gifts, make meals, etc. But we also love getting cards , emails, texts or even simply hearing “I’ve been thinking about you,” when we see friends and acquaintances. It’s a source of great comfort and strength to us to know that people are sending “good vibes” to our family.
For Siblings
Here are some tips for helping siblings manage:
- Make time to talk to individual siblings. Ask them how they are doing, and take time to really listen to them.
- Invite siblings to join you in fun activities. Siblings need to laugh, have fun, and be themselves, especially during this difficult time.
- Send emails or cards to siblings to let them know you are thinking of them.
- Encourage siblings to choose a special support person. Then, help them connect with that person. Keep in mind that they may want you to be that person.
These books may be a useful when helping children who have a sibling with cancer:
- Life Isn’t Always A Day At The Beach, by Pam Ganz
- What is Cancer, Anyway? Explaining Cancer to Children of All Ages, by Karen Carney
- Chemo Crusader and the Cancer Fighting Crew, by Melodie Homer
Sibling “BEADS” Program:
The Sibling Program is adapted from its popular BEADS program, which is designed to help boost the spirits of pediatric cancer patients. Similarly, Sibling BEADS is designed to represent the unique experience of having a brother or sister with cancer. Beads represent milestones, such as celebrating time with family for occasions like Make A Wish, recognizing sacrifices such as time spent in clinic or at the hospital, and encouraging participation in sibling support programs.
Check out this article: How to Help Healthy Children Cope When a Sibling Has Cancer
Advice for Meal deliveries
After a long day at the doctor or still working full time to support your family, one of the nicest feelings is knowing that dinner has been taken care of. If you’re trying to help out a family after they’ve received a serious diagnosis like cancer, bringing them a meal would be a great option! If you’re looking for a little more guidance about what to bring, you’re in the right place.
Set up a meal calendar
There are plenty of sites that make meal calendars really easy, including Take Them A Meal and Meal Train. If the family hasn’t set one up, don’t hesitate to offer to do it yourself. Having a calendar allowed us to choose what days we could really use the help. This way we didn’t end up with too much food and I didn’t have too much left over. A few parents left a cooler with ice packs on the porch in case we weren’t home when the food arrived.
Consider the number of people eating
With 2-3 meals arriving every week, there were a ton of leftovers and unfortunately a lot of food. Many times, we would receive a main course, multiple sides, and dessert, which adds up to a lot of food! On many occasions, I would call my siblings over and tell them dinner was ready since there was so much food left over. If the family has a meal calendar, check how often it is receiving food or ask how many people will be eating.
Get creative-Drop the "same old traditional" meals
All meals are so very appreciated, but many patients and families I've talked to have mentioned that they get a lot of pasta. We are very grateful for all the food we receive, but our favorite meals were the more creative ones. They weren’t necessarily complicated but they were something different. I tend to stick to the basics each week normally, my husband is loving that there is a variety to our meal choices each week. There are other casseroles, soups and chili that can be delivered in a foil pan and heated up when the family is ready. Crock pot meals, or ones that can be easily frozen for later use are very helpful too. If you really want to get super creative, see if they have a Pinterest board or shared meals on Facebook. We all know that those all look amazing to eat, but never have time to try them out--this might be the perfect opportunity.
Takeout/Delivery
This probably isn’t the case for everyone, but in between countless pans of baked ziti, our favorite BBQ bacon pizza was a huge hit that was delivered to our house. Our friend who sent us dinner, didn't even have to do anything besides order it at home and have it delivered to our house. Yes, the family could order takeout themselves, but that still requires some advance thinking, which can be limited during treatment or while working full time. There are so many services out there now where you do not even need to leave your house to get the food delivered to anywhere in the United States. Uber Eats, GrubHub, Postmates, and Door Dash are just a few to check out on top of specific restaurants that might offer delivery service.
Set up a meal calendar
There are plenty of sites that make meal calendars really easy, including Take Them A Meal and Meal Train. If the family hasn’t set one up, don’t hesitate to offer to do it yourself. Having a calendar allowed us to choose what days we could really use the help. This way we didn’t end up with too much food and I didn’t have too much left over. A few parents left a cooler with ice packs on the porch in case we weren’t home when the food arrived.
Consider the number of people eating
With 2-3 meals arriving every week, there were a ton of leftovers and unfortunately a lot of food. Many times, we would receive a main course, multiple sides, and dessert, which adds up to a lot of food! On many occasions, I would call my siblings over and tell them dinner was ready since there was so much food left over. If the family has a meal calendar, check how often it is receiving food or ask how many people will be eating.
Get creative-Drop the "same old traditional" meals
All meals are so very appreciated, but many patients and families I've talked to have mentioned that they get a lot of pasta. We are very grateful for all the food we receive, but our favorite meals were the more creative ones. They weren’t necessarily complicated but they were something different. I tend to stick to the basics each week normally, my husband is loving that there is a variety to our meal choices each week. There are other casseroles, soups and chili that can be delivered in a foil pan and heated up when the family is ready. Crock pot meals, or ones that can be easily frozen for later use are very helpful too. If you really want to get super creative, see if they have a Pinterest board or shared meals on Facebook. We all know that those all look amazing to eat, but never have time to try them out--this might be the perfect opportunity.
Takeout/Delivery
This probably isn’t the case for everyone, but in between countless pans of baked ziti, our favorite BBQ bacon pizza was a huge hit that was delivered to our house. Our friend who sent us dinner, didn't even have to do anything besides order it at home and have it delivered to our house. Yes, the family could order takeout themselves, but that still requires some advance thinking, which can be limited during treatment or while working full time. There are so many services out there now where you do not even need to leave your house to get the food delivered to anywhere in the United States. Uber Eats, GrubHub, Postmates, and Door Dash are just a few to check out on top of specific restaurants that might offer delivery service.
How can i get involved in the cancer community?
Support groups
There are support groups for everyone: patients, siblings, parents, and even friends. Treatment can be an isolating experience, but these groups remind you that you’re not alone. They provide opportunities to meet other people who understand what you’re going through.
Local organizations
If you’re not interested in a support group, you can still meet other patients and families through local organizations. Many local, cancer-focused non-profits organize outings to sports games, concerts, and other events. A little Google searching or Facebook searching will lead you into the right direction.
Volunteering
We have been receiving a lot of support from local organizations during my son's treatment. It is amazing the amount of foundations and organization that are out there and that your social workers are associated with. Save that information and when you are ready you can give back by volunteering at their events and fundraisers. Find a cause that’s important to you and run/walk their 5K or man a water station. If sports aren’t for you, keep an eye out for less active events.
Camp
There are camps all around the world that provide a supportive environment for patients and families. Some camps offer weekend getaways for the whole family, while others are only for patients or siblings. No matter what the setting, camp provides support.
The Children’s Oncology Camping Association, International (COCA-I) is a community of camps for children with cancer and their families. There are approximately 100 member camps around the world, most of which are in the United States.
Check out the map to find one near you.
Camps and Retreats for Families and Children Affected by Cancer
Retreats, Camps & Recreational Programs
There are support groups for everyone: patients, siblings, parents, and even friends. Treatment can be an isolating experience, but these groups remind you that you’re not alone. They provide opportunities to meet other people who understand what you’re going through.
Local organizations
If you’re not interested in a support group, you can still meet other patients and families through local organizations. Many local, cancer-focused non-profits organize outings to sports games, concerts, and other events. A little Google searching or Facebook searching will lead you into the right direction.
Volunteering
We have been receiving a lot of support from local organizations during my son's treatment. It is amazing the amount of foundations and organization that are out there and that your social workers are associated with. Save that information and when you are ready you can give back by volunteering at their events and fundraisers. Find a cause that’s important to you and run/walk their 5K or man a water station. If sports aren’t for you, keep an eye out for less active events.
Camp
There are camps all around the world that provide a supportive environment for patients and families. Some camps offer weekend getaways for the whole family, while others are only for patients or siblings. No matter what the setting, camp provides support.
The Children’s Oncology Camping Association, International (COCA-I) is a community of camps for children with cancer and their families. There are approximately 100 member camps around the world, most of which are in the United States.
Check out the map to find one near you.
Camps and Retreats for Families and Children Affected by Cancer
Retreats, Camps & Recreational Programs
Apps
Free Apps:
Name • Age • Device
1. Worry Box by Excel At Life
Paid Apps:
1. Positive Penguins
Name • Age • Device
1. Worry Box by Excel At Life
- 6-16 • Android
- 6+ • Apple
- 6+ • Android/Apple
- 13+ • Android/Apple
- 4+ • Apple/Android
- 10+ • Apple/Android
- 4+ • Apple/Android
- 4+ • Apple iPad
- 4+ • Apple
- 5+ • Android/Apple
- 7+ • Apple
- 4+ • Apple
- 3+ • Apple
- 4+ • Apple
- 12+ • Apple
- 4+ • Apple
Paid Apps:
1. Positive Penguins
- 9-11 • Apple: $.99 /Android: $1.99
- Up to 12 • Apple: $ 4.99
- 5+ • Apple: $4.99
- 4-8 • Apple: $3.99
- 8+ • iPad: $5.99
- 9+ • Apple: $.99
- 9+ • Apple: $2.99
- 3+ • Android/Apple: $2.99
Books for Kids and Teens
Feelings
- What to Do What You’re Scared and Worried: A Guide for Kids. James J. Crist; Free Spirit Publishing; 2004.
- What to Do When You’re Sad & Lonely: A Guide for Kids. James J. Crist; Free Spirit Publishing; 2004.
- When I Feel Scared. (for young children) Cornelia Maude Spelman; Albert Whitman & Co.; Morton Grove; 2002.
- What About Me? When Brothers and Sisters Get Sick. Allan Peterkin; Magination Press; 1992.
- Terrible Thing Happened. Margaret M. A Holmes; Magination Press; 2000.
- When something terrible happens: Children can learn to cope with grief. M. Heegard; Bloomington Woodland Press; 1991.
- Jamie’s Journey: Cancer from the Voice of a Sibling. Sharon Wozney; Little Five Star; 2016.
- The Sibling Slam Book: What It’s Really Like to Have a Brother or Sister With Special Needs. Don Meyer; Woodbine House; 2005.
- My Day, Your Day. Robin Ballard; Greenwillow Books; 2001.
- A Suitcase Surprise for Mommy. Cat Cora; The Penguin Group; 2011.
- Llama Llama Misses Mama. Anna Dewdney; The Penguin Group; 2009.
- Don’t Forget to Come Back. Robie Harris; Candlewick; 2004.
- The Kiss Box. Bonnie Verburg; Orchard Books; 2011.
- The Invisible String. Patrice Karst; Devorss & Co.; 2000.
- The Kissing Hand. Audrey Penn; Tanglewood; 1993.
- Clifford Visits the Hospital. Norman Bridwell; Scholastic, Inc.; 2000.
- When You’re Sick or in the Hospital Tom McGrath; Abbey Press; 2002.
- What’s In a Doctor’s Bag Nell Shulman & Sibley Fleming; Rx Humor; 1994.
- Going to the Doctor T. Berry Brazelton; Da Capo Press; 1992.
- Going to the Hospital Anne Civardi; Usborne Books, 2006.
- Harry Goes to the Hospital. Howard J. Bennett; American Psychological Association; 2008.
- Curious George Goes to the Hospital. H. Rey; Houghton-Mifflin; 1966.
- Rita Goes to the Hospital. Maritine Davison; Random House, Inc.; 1992.
- Corduroy Goes to the Doctor. L. McCue; Viking Children’s Books; 2001.
- Maisy Goes to the Hospital. Lucy Cousins; Candlewick; 2009.
- My Trip to the Hospital. Mercer Mayer; Harper Collins; 2005.
- When Molly Was in the Hospital: A Book for Brothers and Sisters of Hospitalized Children. D. Duncan; Rayve Productions;1994.
- Franklin Goes to the Hospital. Paulette Bourgeois; Random House, Inc.; 1985.
- Sesame Street, A Visit to the Hospital. Deborah Hautzig; Random House, Inc.; 1985.
- This is a Hospital, Not a Zoo! Roberta Karim; Clarion Books, Reprint edition; 2002.
- Paddington Bear Goes to the Hospital. Michael Bond, Karen Jankel and R. W. Alley; Harpers Collins; 2001.
- Katie Goes to the Hospital. Barbara Taylor Cork; Brighter Child; 2002.
- Going to the Hospital. Fred Rogers; Putnam, Reprint edition; 1997.
- Do I Have to Go to the Hospital? A First Look at Going to the Hospital. Pat Thomas; Barron’s Educational Series; August, 2006.
- I Don’t Want to go to the Hospital (A Little Princess Story). Tony Ross; Andersen Press; 2013.
- I Don’t Want to go to the Hospital (A Little Prince Story). Tony Ross; Andersen Press; 2013.
- What to Expect When You Go to the Doctor. Heidi Murkoff; Festival; 2000.
